Histio 3 Round 12 Day 3 OR We Are Sprung

Delivery Pizza, something a boy from Royal City knows little about---but what little he knows-he likes!!

I am not doing a great job of taking pictures during this "last" round of chemo.  It might be because I am depressed because it looks like chemo isn't ending after all----testing shows Jackson isn't stable.  So our Oncologist in Seattle and I have talked to Dr. McClain (histio specialist in Houston, TX) and he is recommending we move to another chemo.  I think Jackson is a "lifer" a kid whose disease isn't going to leave him alone (I know some of you are thinking well duh...!!).  So the chemo choices mentioned so far are Gleevec and Clofarabine.  We have an MRI scheduled for Feb. 28, then we will fly down to Houston so Dr. McClain can evaluate Jackson and help us decide the best course of action for his health and future.

In happier news Jackson made his little roommate happy today.  Cutest little guy 4 year old boy named Hunter.  He was just diagnosed Monday, and was admitted Monday about midnight.  Yesterday he had his surgery to get his port placed, Jackson told him how all superheroes have ports (Hunter wears a superman cape all the time) and let Hunter check his port out.  Then we heard Hunter complaining that he wanted strawberries, and blueberries. The cafeteria at the hospital had none.  His Grandma was able to distract him with a transformer book.  But today when we were on a "lunch pass" from the hospital we picked up a transformer toy, some strawberries, and some blueberries and now Jackson is a rock star!!  It's easier than you think to be a rock star, although out of season berries are involved!  Jax was discharged at 4:00 today and although we are looking forward to some real sleep, we will miss that cute little family we shared a room with for 2 days.  It helped me reflect back to recognize how long and encompassing our cancer journey has been with Jackson, I would give anything to keep other little four year olds from cancer.  Yet at the same time it hasn't all been bad in the least.  We have seen the generous, kind, and amazing side of so many people.  We have been served by so many people and we have learned to rely on the Lord, all good things.  In fact just today Bishop Jenks, and Jackson's Young Men President Shane Christensen came to Seattle and took Jackson and I out to lunch.  Busy guys with families, jobs, and church callings taking half their day to lift Jax.  See its not all bad at all.