Wednesday, April 4, 2012

Histio part 3 Chemo round 2 day 1

We are back, and the pass was bare and dry---I probably just jinxed us for the ride home, but it was so nice today!  Jackson is going to have to add a day to his schedule and stay through Sunday.  Hope the Easter Bunny can adjust!! Let's hope that Bunny-boy is on his game this year.  On Sunday, Jackson will get a Neulasta injection which has to be given 24 hours after the last Chemo, thus the Easter Sunday procedure.  This Neulasta shot is given to patients who are being given a myelosuppressive (basically White blood cell killing) chemo.  It should help him not go as low, and to come back up faster when he does go low.  We are trying to avoid Neutropenia, a dangerous low blood count condition that can be dangerous infection wise.  I learned new words today, Nadir (the low point), Myelosuppressive (WBC killer), and Neulasta (trying to save your dipping counts good guy shot).  If it works it will be worth an Easter Sunday at Children's Hospital.   Especially since he missed 2 days of school last week because of low ANC counts. 

Here are some pictures from the last week.
Thursday Sierra had a science fair and the 3rd graders got to attend, Zoe and Miyah were taking careful notes and looking cute too!

 There she is, the Queen of Cat vs Human Saliva~spoiler alert~~~Human saliva grow more bacteria.
 Today at the hospital, waiting to start the Oncology appointments.  His ANC was up to 1100 today, and his WBC was 3.4  RBC was 4.67 HCT was 39.6 and Platelets were 443.  Remember my hard to crack code--Red = not normal range--Blue=normal range.
Sierra, Zoe and Carter playing in the waiting room.  Not long after this Zoe and Carter checked into their favorite hospital room--the sibling play room.  They left 2 hours later with 4 painting,  5 drawings, and 2 prizes.

Dr. Rebecca Johnson and Jackson.  Jax had his IVIG, IV fluids, and ARA-C.  So far, so good ~ no headache yet.  Praying it stays that way.  Tonight the boys, (Michael, Jax and Carter) are at the Red Lion and the girls (Becky, Sammi, Sierra and Zoe) are at the Quality Inn and Suites.  The kids keep referring to the boys hotel, and the girls hotel---makes me feel rich!  Actually the American Cancer Society got us 1 room at the Red Lion and when we realized this chemo landed during Spring Break we called to get another room so we could all be together for these appointments.  Turns out the Quality Inn and Suites is almost $300 dollars a night cheaper with their hospital rate!  So Boys have a hotel and girls have a hotel!  I love that we are all here, we had lunch and dinner together, family prayer, this is my favorite Chemo day yet!  I am pretty sure Jackson has enjoyed it too.  Sierra and Sammi had Jackson cracking up while waiting for his appointments today~and when Jackson starts to really laugh it cracks us all up.  As long as he stays feeling well I predict a good Round 2.  Sammi is requesting that I end this post by saying "Hi to the whole world from Samantha Reine", so I did.

5 comments:

Louise said...

And "hello to Samantha Reine!" So glad day 1 went so well and Jax is feeling good (keeping my fingers crossed). Praying for a a good day today. Loved the pictures too!

Louise said...

PS- Wow, that ANC has been working over time the past 5 days, what a come back!!

Holly said...

Soo glad you all get to be together for this one! We'll keep praying for NO headache! Love you all! Oh and "HI" Sammi!

Beverley said...

So glad you got to all go together this time, love reading your post that keeps me updated, thank you, have the best time that you can under the conditions, be safe and love to all

Brenda said...

Hi Sam. And yay for good chemo days!